Colorado Sickle Cell Foundation is opening a center in the near future! We are a Non-Profit Organization based in Denver, Colorado that is enabling people to better understand this genetic disorder disease and get support through screenings and consultations.
One out of 100 African-Americans carries the Sickle Cell
Anemia Trait. Our goal is to help families who are lacking financial and medical elements needed to deal with a family member who is diagnosed with the disease. This disease is very
fatal if it is not maintained by proper and expensive medicine, and
the problem is that most African-American families don’t know where or who to
turn to when this unfortunate situation occurs. Our organization will enable them
to find financial help either from the private or government entities.
Our mission is to educate the African-American family on how to deal effectively with the medical aspect of the disease, and also to deal with the emotional implications associated with this disease, which does not have a cure.
With more than five
million people living with the disease worldwide, millions of these people are African-Americans who live with
the disease in the United States. Even though a large majority of black people knows about this malady, only few really understand the disease, and the consequences that this malady can create.
We also want to educate doctors abroad where there is a large majority of black populations on how to test for the malady, how to read the symptoms, and finally how to treat the malady effectively, because until now, there is no cure for this disease. We will create an awareness network in Denver, Colorado, and around the State for anybody. Even if anyone in the world has a question for our doctors who are specialists in Sickle Cell disease we will answer them. Also, we welcome doctors who live in developing countries and do not have the technology, but want to know how to treat the disease with what they have in their countries; our doctors here can advise them through our 24-hour support network.
Become a Bone-Marrow Donor.
The African-American community has been almost non-existent when it comes to becoming a Bone-Marrow Donor in the State of Colorado and throughout the United States; therefore, there are a lot of African-Americans dying unnecessarily because of the lack of Donors. The majority of people do not know how to become a donor; where to go, and what the process of doing it is. The Colorado Sickle Cell Foundation wants to jumpstart a big campaign to teach people how to become a Bone-Marrow Donor. Doctors who treat the disease will be our special guests at the opening of the center, and they will answer questions or concerns involving our campaign.
UPDATE ON SICKLE CELL DISEASE RESEARCH by Dr. Niihara